Who are we
The EULAR Outcomes Measures Library (OML) aims to be a comprehensive catalogue of validated instruments (indices, questionnaires, scales, or others), with an emphasis on patient-reported outcomes (PRO) used in rheumatology.
The catalogue includes a description of each instrument, including the reference identification, developer contact information, a short description if the instrument,its practical application.and, if possible, links to validated translated versions.The instruments included are obtained by systematic review, categorized by disease (e.g. rheumatoid arthritis), language or by topic (e.g. work productivity).
The EULAR OML has been created by rheumatologists, health professionals, students and patients who have an interest in this field of research. The project is lead by Isabel Castrejón, Laure Gossec, and Loreto Carmona, and a Scientific Committee: Robin Christensen, Francis Guillemin, Marieke Scholte-Voshaar, Alan Tennant, Till Uhlig, Lillian van Tuyl, Angela Zink, Montse Ferrer, Birgit Prodinger, and Martine Caron. There are many people contributing to feed the OML, as this is an ongoing initiative.
Persons currently responsible for the OML sections:
- Fibromyalgia & Chronic Pain: José Bernardo Negrón
- Generic instruments: Nelly Agrinier
- Gout: Mariano Andres
- Low back pain: Violaine Foltz
- Osteoarthritis: Tania Gudu
- Osteoporosis: Karine Briot
- Pediatric rheumatology: Angelo Ravelli & Alessandro Consolaro
- Psoriatic arthritis: Laure Gossec
- Rheumatoid arthritis: Tania Gudu
- Spondyloarthritis: Pedro Machado
- Systemic Lupus Erythematosus: Isabel Castrejon
- Systemic sclerosis and Raynaud's: Francesca Ingegnoli
- Work productivity: Birgit Prodinger
Special thanks to Diego Benavent and Sofia Ramiro for updating the OML.
Do you want to be part of our community? Just let us know!
